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Empowering Spinal cord injury persons by education and ease of access to urological and sexual health care through Technology, Education, and Outreach in the context of Low middle income countries like India.

by Dr Dinesh Suman
in Patient Stories, Uncategorized
0

Spinal cord injuries (SCIs) were historically regarded as untreatable afflictions, but lessons from past conflicts across the World during the last Century revealed the importance of addressing urinary issues in SCI patients. Although strides in scientific understanding have reduced urinary-related deaths in the Western world, India still grapples with alarming rates of neglect. Urinary complications afflict over 75% of SCI patients, leading to repeated illnesses and fatalities in nearly 15% of cases. Additionally, cultural and religious factors, alongside discomfort and lack of awareness, contribute to over 95% of SCI patients overlooking sexual and fertility concerns. This leads to psychological distress and impaired self-confidence among many SCI individuals.

At the Indian spinal injuries centre (ISIC) neurourology department, we have embraced a blend of technology and compassion to transform the lives of SCI patients. Through the education website for SCI bladder care, we have pioneered an innovative approach to addressing urinary and sexual health concerns. By utilizing social media platforms such as YouTube, Instagram, LinkedIn, and WhatsApp, we ensures comprehensive outreach. The center also employs real-time service data and telehealth solutions to overcome barriers to accessing SCI care.

The Role of Technology and Education:  The ISIC Neuro-urology Department plays a pivotal role in using technology and education to extend its reach. Central to this effort is the scibladder.com website, a hub of information that equips SCI patients with resources to tackle urinary and sexual health matters. The user-friendly interface of the website grants access to articles, videos, and testimonials, empowering patients to navigate the intricacies of their condition. In an era where information is at our fingertips, scibladder.com transcends geographical boundaries, offering insights into self-care, psychological well-being, and intimacy – often neglected in conventional healthcare settings.

Harnessing Social Media for Outreach:  

Recognizing the power of social media, we strategically leverages platforms like YouTube, Instagram, LinkedIn, and WhatsApp. The YouTube channel hosts a range of videos, from expert interviews to success stories of those who have conquered SCI challenges. These videos provide practical advice, dispel myths, and foster a sense of community, alleviating the isolation SCI patients often feel. Instagram and LinkedIn amplify this effort with bite-sized content that resonates widely. These platforms encourage dialogue, shared experiences, and a nurturing space for patients and caregivers. WhatsApp integration allows real-time engagement, promptly addressing queries and concerns. This personalized interaction fosters trust and eases anxieties.

Real-Time Service and Empowering Informed Decisions:

 ISIC endeavor sets itself apart with its commitment to transparency and up-to-date data sharing. The center provides current statistics on services, outcomes, and patient experiences. This information empowers SCI patients and their families to make informed choices about their care. Armed with knowledge of success rates, complications, and patient stories, individuals approach their treatment journeys with confidence.

Telehealth and Teleconsultation:

Breaking Barriers Geographical constraints often impede SCI patients’ access to specialized care. Our neurourology department counters this challenge through telehealth and teleconsultation services. Virtual appointments facilitate direct communication between patients and expert healthcare providers, removing the need for travel and physical discomfort. This approach democratizes quality healthcare, ensuring even remote areas can access specialized medical guidance.

A Team of Dedicated Professionals:

The neurourology department at the ISIC triumphs hinge on its devoted team, comprising medical experts, content creators, support staff, and more. This collective commitment propels the success of scibladder.com and the center’s social media presence. Professionals inject empathy, expertise, and a zeal for tangible change in SCI patients’ lives. Their collaboration ensures the information disseminated is accurate, up-to-date, and truly impactful.

Conclusion:

The ISIC Neuro-urology Department and the educational website initiative epitomize a transformative healthcare paradigm. By embracing technology, education, and inventive outreach, our neurourology unit tackles multifaceted SCI challenges. Integration of YouTube, Instagram, LinkedIn, and WhatsApp expands its reach, nurturing a supportive virtual community. Real-time service data and telehealth solutions dismantle barriers, while our team`s dedication guarantees holistic care provision.

In a tech-reshaped healthcare era, the ISIC neurourology department stands as a pioneering force that recognizes digital tools’ potential to revolutionize patient experiences. As we evolve, it exemplifies the possibilities at the intersection of technology, education, and compassionate healthcare delivery.

Tags: catheters for bladder careintermittent cathneglected bladderneurogenic bladdersexual functionsspinal cord injury
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Part 3: ISIC tools of Change for ” Neglected neurogenic bladder in spinal cord injury patients” in India. भाग 3: भारत में “रीढ़ की हड्डी की चोट के रोगियों में उपेक्षित न्यूरोजेनिक मूत्राशय” के लिए परिवर्तन के आईएसआईसी समाधान उपकरण

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Action plan (2023) for the spine surgeons and the spine units to improve neurourological care in persons with spinal cord injury (SCI)

Dr Dinesh Suman

Dr Dinesh Suman

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PART 1: History of development of urological care in spinal cord injury. A story of hope and optimism.   भाग 1: रीढ़ की हड्डी की चोट में मूत्र संबंधी देखभाल के विकास का इतिहास। आशा और आशावाद की कहानी.

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PART 1: History of development of urological care in spinal cord injury. A story of hope and optimism.   भाग 1: रीढ़ की हड्डी की चोट में मूत्र संबंधी देखभाल के विकास का इतिहास। आशा और आशावाद की कहानी.

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  • Bladder
    • Purpose?
    • NLUTD
    • Neurogenic Bladder
    • Neglected Bladder
    • Urinary Infections
    • Catheters for Bladder Care
    • Follow Up
    • Advance Treatments
  • Sexuality
    • Emotional and social aspects
    • Physical aspect of sexuality
    • Fertility and Parenting
  • Mind Management
    • Patient and Mind managment
    • Care giver and Mind management
  • Podcast
    • दैनिक हिंदी “ज्ञान के मोती:
    • ऑडियो हिंदी में- पॉडकास्ट
    • English -Podcast- SCI Bladder
  • For Nurses
    • NLUTD course
    • Induction program for Nurses
    • Urinary Cathetrization
  • Medical Consultation
    • Primary Information for teleconsultation
  • ISIC Magazine
    • The Power of the mind -The ISIC Digital Magazine: vol.1
  • Patient Stories
    • Our story of conquer
  • About Us

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